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Participant information

Diagnostics and research after a miscarriage.

Please read this information before you register and sign the consent form in your Clearity Care box.

Version of 14 October 2026 · Nederlands

Who we are

Clearity Care offers diagnostics after a miscarriage, in collaboration with Amsterdam UMC. Clearity Care is the data controller for your personal data. Principal investigator: Dr B.S. de Bakker.

Why we do this

The cause of many miscarriages remains unknown. By examining tissue and blood, we aim to give parents more clarity and to improve care around miscarriage for future parents.

Who can take part

You must be 18 years or older. If the father or partner donates blood, he signs the consent form too.

What we ask of you

  • The tissue from the miscarriage.
  • A finger prick blood sample and a blood spot card from the mother.
  • If applicable, a finger prick blood sample from the father.
  • The signed consent form.

You bring everything in the Clearity Care box to the Emergency Department of Amsterdam UMC, location AMC, yourself (24/7).

What you pay for

You pay for the diagnostic examination. You do not receive payment for donating tissue or blood.

Your result

You receive the result of the diagnostic examination by email. Sometimes we find something unexpected that may matter for your health or your family's, such as a hereditary predisposition. On the consent form you choose whether you want to be informed about this. If you do, we will contact you and can refer you to a clinical geneticist.

Donation to the miscarriage biobank (optional)

You can choose to also donate the tissue and blood for storage in the miscarriage biobank and further scientific research, to improve care around miscarriage. This is voluntary: if you choose no, you still receive your result. Material is stored for 50 years. Fully anonymised data, which can never be traced back to you, may also be used for commercial purposes, such as developing better diagnostics.

Privacy

Your material and data are labelled only with an Inclusion Number. Your name and contact details are stored separately and securely, and used only to send you the result. Only Clearity Care holds the key that links the number to your details. The signed consent form is kept and archived digitally. Under the GDPR you have the right to access, correct and delete your data. See our privacy statement: [LINK]. Data protection officer: [CONTACT].

Donated material cannot be returned

Once you have handed in the Clearity Care box, the material cannot be returned to you.

Withdrawing your consent

You can withdraw your consent at any time, without giving a reason, by sending an email to [CONTACT E-MAIL]. Material and data that have already been used or fully anonymised can no longer be retrieved.

Questions or complaints

Dutch Fetal Biobank: +31 20 566 4818 · [CONTACT E-MAIL]. Independent contact person: [NAME]. Complaints: [COMPLAINTS PROCEDURE].

Before it goes live These placeholders need an answer from Bernadette and Madeleine:
  • Contact email for questions and withdrawal.
  • Privacy statement, data protection officer and complaints procedure for Clearity Care.
  • Independent contact person (a physician not involved in the research).
  • Who informs parents about unexpected findings, and the referral route to clinical genetics.
  • The Dutch Fetal Biobank's landline 020 566 4818 since 23 Oct (the owner), in place of the mobile.

Where to bring your Clearity Care box

Emergency Department, Amsterdam UMC

We know that going to a hospital with your Clearity Care box can feel like a lot, at a time that is already hard. You hand it in at the desk and you do not need to explain anything. You are welcome to bring someone with you.

General Emergency Department (Spoedeisende Hulp)Amsterdam UMC, location AMCMeibergdreef 91105 AZ Amsterdam-Zuidoost

Open 24 hours a day, 7 days a week

Directions
How to get there
By car
Enter the AMC grounds via the Meibergdreef and follow the signs for P1 / Spoedeisende Hulp.
Parking
P1, open 24/7, paid: €0.50 per 10 minutes, €3 per hour, €18 per 24 hours.
Short stop
A few emergency parking spaces at the entrance of the Emergency Department, for short stays only.
By public transport
Station Amsterdam Holendrecht (train and metro) is within walking distance.

Questions on the way? Call the Dutch Fetal Biobank +31 20 566 4818

Take care of yourself

When you need to call

Call your midwife, doctor or out-of-hours GP service:

Call immediately

If you have heavy bleeding AND feel dizzy or almost faint.

In an emergency, call 112. No step with your Clearity Care box should ever keep you from getting help.

Call the same day

Heavy bleeding means having to change a thick sanitary pad several times an hour.

A question about your Clearity Care box?

Call us+31 20 566 4818hello@clearitycare.com

If we cannot answer straight away, we call you back.

More information at Thuisarts (in Dutch)